HR 1313, The Preserving Employee Wellness Programs Act, will allow employers to fine employees who decline to participate in genetic testing as part of a workplace wellness program. Participation in workplace wellness programs can often save employees 30%-50% off of their health insurance premiums. This bill has raised concerns with supporters of the Genetic Information Non Discrimination Act (GINA), a bi-partisan 2008 law prohibiting employers and health insurers from requiring individuals to undergo genetic testing and discriminating based on the results of those test.
AADE is concerned about this legislation as employees with diabetes could be denied wellness program discounts.
Supporters of HR 1313 purport that genetic testing would not technically be mandatory for employees seeking insurance coverage, only those seeking discounts through a workplace wellness program. Supporters also maintain that GINA protections against genetic discrimination would remain in place to protect employees. However, not enrolling in a workplace wellness program would cost employees 30% more in health insurance premiums, creating a “penalty” which would likely be an undue burden on many employees. Thus, many will have no choice but to undergo the test in order to afford their healthcare coverage, and disclosing the results to their employers. Further, enforcing GINA protections against genetic discrimination is often difficult, and many employees may find themselves the victims of discrimination.
AADE joins the American Diabetes Association, the AARP, and nearly 70 other advocacy groups in opposing the passage of HR 1313.
Make sure your voice is heard! Call your Representative and tell them you oppose HR 1313. Find your Congressional Representative at govtrack.us
If you have any questions, please contact AADE Director of Federal and State Advocacy Kurt Anderson at kanderson@aadenet.org